Support for you
Our purpose is to educate the public and healthcare professionals about inflammatory breast cancer (IBC), support individuals and family members diagnosed with IBC, and to promote and fund IBC research in the United Kingdom.
We make it clear that we are not medical professionals. Please see our medical disclaimer below.
Medical disclaimer
Any medical information referred to in or through our site is given as information only and is not intended:
as medical diagnosis or treatment
to replace consultation with a qualified medical practitioner
to advocate or recommend the purchase of any product or to endorse or guarantee the credentials or appropriateness of any health care provider
We strongly suggest you consult a healthcare professional for specific advice about your situation.
How we support you
Our charity hosts private Facebook support groups, but for those not on social media we also provide direct e-mail support. Please Contact Us for details.
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MAIN SUPPORT GROUP
Our support group for all patients diagnosed with IBC can be found here:
Inflammatory Breast Cancer Support UK -
FAMILY GROUP
Our support group for family members can be found here:
The Inflammatory Breast Cancer Network UK Family Support Group
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LIVING WITH GROUP
We also run two additional support groups: Reconstruction after IBC Treatment and Living with IBC (for patients diagnosed with metastatic/secondary IBC). Both of these groups are set to private, and we add patients to them from our main patient support group as relevant. So join the main support group first.
Tips for Patients
We have helpful tips for each stage of care, please click on the pictures below to find advice for you.
Meet Ups
Our IBC support group aims to organise regular, in-person meetups. Past meetups have been held at various locations throughout the UK and in Ireland.
Each year one of our meetups takes place at the University of Birmingham, where participants can take a tour of the tissue bank and attend a question & answer session with two IBC experts: our charity-funded researcher and a leading IBC breast oncologist. These educational sessions at the university are followed by a group dinner in central Birmingham.
As inflammatory breast cancer is so rare, without our meetups many of our attendees would not have an opportunity to meet others with the same diagnosis. Contact us if you would like to join us or if you would like to organise a meetup local to you.
See below some photos of our previous meet ups!
Birmingham, August 2023
Leeds, May 2023
Birmingham, June 2022
Liverpool, May 2019
Glasgow, September 2019
Milton Keynes, October 2019
Edinburgh, May 2018
London, September 2018
Dublin, May 2017
Southampton, October 2017
Glasgow, May 2016
Cardiff, October 2016
Manchester, May 2015
Brighton, October 2015
London, May 2014
Birmingham, October 2014
Meet Ups 2026
New for 2026, we’re hosting not just one, but several in-person meet-ups across the UK and Ireland this year!
These will be relaxed, informal get-togethers with coffee and a chat . A chance to meet others living with IBC in person, share your stories and hear theirs too. In a safe and confidential space, you’ll enjoy open, supportive conversations and connect with people who fully understand what you’re going through.
They are FREE to attend, drinks and refreshments will be provided.
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Dublin
Tuesday 24th March 2026
11:00am-2:00pm
Irish Cancer Society
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Manchester
Date TBC 2026
Time TBC
Maggie’s Centre, Manchester
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Bristol
Tuesday 12th May 2026
1:00pm-5:30pm
Penny Brohn, Ham House
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Cardiff
Monday 6th July 2026
10:30am-1:30pm
Ray of Light, Whitchurch
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Birmingham
TBC September 2026
10:00am-4:00pm
University of Birmingham
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Edinburgh
Saturday 31st October 2026
11:00am-2:00pm
House of Hope, Edinburgh
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London
Date TBC
Time TBC
Location TBC
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Leeds
Date TBC
Time TBC
Location TBC